Show your support for those who have a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) — visit The Dublin Link, which is lit orange tonight.
🧡 Learn more about #EhlersDanlosSyndrome and #MyEDSChallenge
➡️ The Ehlers-Danlos Society
#NewProfilePic Hello May. Hello ESD & HSD Awareness Month. I wish everybody zero pain zero fatigue this month. #MyEDSchallenge
Been wanting to do this as May is Ehlers Danlos Awareness Month!
Day 1! #myEDSchallenge
I was finally diagnosed with Hypermobile Ehlers Danlos Syndrome, a rare genetic condition, a few months ago after a long battle to finally figure out what was happening to me my entire life
Day 3!
#myEDSchallenge
Zebra Strong 🦓
'When you hear hoof beats behind you, don't expect to see a zebra.' Medical students are given this quote as a way to let them know that they should look for a common diagnosis for the symptoms
Day 3!
#myEDSchallenge
Zebra Strong 🦓
'When you hear hoof beats behind you, don't expect to see a zebra.' Medical students are given this quote as a way to let them know that they should look for a common diagnosis for the symptoms they are given instead of the rare cause.
#MyEDSChallenge
May Awareness Day 5 – #SelfCareSunday
How do you practice self-care while living with EDS or HSD?
With my final assignment deadline on my MSc course approaching, I had some 'time-out' today & spent some beautiful #TimeInNature to down-regulate my nervous system
Day 4 - EDS Awareness Month
Orange for EDS & HSD
Next year I will remember to submit a request to my local council to light up certain landmarks in honour of Ehlers-Danlos Syndrome. Here is my version of light it up Orange!
The Ehlers-Danlos Society Ehlers-Danlos Support UK
#myEDSchallenge
It’s Ehlers Danlos awareness month and I will be sharing this month all about EDS and why there needs to be more awareness. 🦓
#EhlersDanlosSyndrome #MyEDSChallenge #MyHSDChallenge #eds #chronicpain #raredisease #invisibleillness
It's May 1st and that means it is Ehlers Danlos Awareness Month Day 1. Join me as I introduce myself and start telling my story. #myEDSchallenge #chronicillness #hypermobility #ehlersdanlosawareness #edssociety
Day 2!
What is EDS?
Ehlers Danlos Syndrome is a rare genetic connective tissue disorder that causes generalized joint hypermobility, joint instability, and chronic pain.
There are currently 13 types of EDS, all of which cause their own set of symptoms
#myedschallenge
Happy #EDSawarenessmonth
I was just diagnosed with hEDS last week after suffering from so many symptoms for a while now
EDS is a rare condition and I want to help spread awareness 🤍🦓🖤 The Ehlers-Danlos Society
#myedschallenge
#showyourstripes
#iamazebra
#eds
#togetherwedazzle
Día 3- SER UNA CEBRA FUERTE
Ser una cebra fuerte es hacer adaptaciones para seguir haciendo las cosas que te gustan, o adaptarse a no poder hacer las cosas que antes hacías. Ser una cebra fuerte es encontrar la fuerza ante la adversidad.
#TogetherWeDazzle #MyEDSChallenge
May is #EhlersDanlosSyndrome AwarenessMonth . I'm joining @ehlers.danlos in #RaisingAwareness about #EDS and its #impact . 🧡 🦓
#MyEDSChallenge #EhlersDanlosSyndrome #EhlersDanlosSyndrome Awareness #EDS Awareness #EDS AwarenessMonth #Community #NotAlone #Support #Educate #Advocate
🦓 🧡 Wear #Orange for #EDS & #HSD #Awareness 🧡 🦓
#MyEDSChallenge #EhlersDanlosSyndrome #EhlersDanlosSyndrome AwarenessMonth #EhlersDanlosSyndrome Awareness #EDS Awareness #EDS AwarenessMonth #Community #Support #Share #Advocate #Access #Accommodate #Access ToCare #EndStigma
#myEDSchallenge
Hi, I'm Sarah. To raise awareness of the Ehlers-Danlos syndromes, during May I will:
1) Take part in the Walk N Roll Challenge
2) Share awareness posts
3) Tell my healthcare professionals more about EDS
Please donate via JustGiving
Day 3 – Zebra Strong
The zebra is our symbol and no two zebras have identical stripes just as no two people with a type of EDS are identical. Living with an EDS is not easy. Being zebra strong is facing challenges with EDS.
The Ehlers-Danlos Society Ehlers-Danlos Support UK
#myEDSChallenge
