크리스마스에 바라는 건 당신뿐 🎄❄☃️

A.C.E #choiceselcaday #Choice Selca #ACE #Choice #CSD #EhlersDanlosSyndrome #EDSAwareness

#iwokeuplikethis #edsawareness #butyoulookfine Ehlers-Danlos Support UK
The reality of living with EDS can often be very different to how it is perceived to the… instagram.com/p/Bkm00YAHxKU3…

Some of the rocks that have been painted and hidden for us recently #EDSAwareness

may is#EDSAwareness month. i am aware. thx meatcage

Adaptions I've made! In the kitchen I have a half a computer chair that means I can sit down and empty the dishwasher and if I suddenly need a chair it's there! POTSIE Life ❤️💜 #kitchendecor #potssyndrome #myEDSchallenge #EhlersDanlosSyndrome #EDS #EDS Awareness #EDS photochallenge

Won't let my disability stop me from going to #Disneyland #Sith #disabled cosplayer #disabled #EDSawareness

Vascular Ehlers Danlos Syndrome is the most severe form of EDS. There is no cure, but that won't stop me from researching the most effective treatment plans to manage symptoms and fight for equity! #reds4veds #OccupationalTherapy #eds #eds awareness #zebrastrong #veds #vasculareds

#ehlersdanlosawarenessmonth #eds awareness #eds themighty.com/2018/05/ehlers…

Ehlers-Danlos Support UK The Ehlers-Danlos Society Can I ask a favour to read this short description of #eds ? Maybe someone you know is struggling with symptoms. A lovely family I know have had an exhausting journey getting a diagnosis. ehlers-danlos.org/what-is-eds/ Thank you 🙏 #eds awareness

Listen to this podcast interview that I gave to @HalimaAthumani from SciDev.Net about my journey into a career in science. Thanks for this opportunity to share my story 🙏 .
#womeninscience
Women in Science.Africa
#EDSAwareness
Ehlers-Danlos Support UK
#girlchildeducation
scidev.net/global/role-mo…

May is EDS Awareness month.
12 Years missed diagnosed.
Got my diagnoses 3 years after EDS was first mentioned to me.
It takes far too long to get a diagnoses. EDS Awareness Zebra at Altitude
#EDS #EDS Awareness #ZebraAtAltitude

When a random person tries to tell you you’re gonna die soon 🙄🤦🏽‍♀️🙃 The Ehlers-Danlos Society #EDSAwareness #EhlersDanlos #Spoonie #Potsie #TikTok

Did you know ? May is #EDSawareness #HSDawareness and #SymptomaticHypermobilityAwareness month

Here are some of the most common symptoms and conditions :

Here is just a small peek into my week. On surgery number 2 and 1 more to go!Invisible illnesses & chronic pain is very real. Just stop and think before you are quick to judge someone “who doesn’t look sick”. #EDSAwareness

EDS (EHLERS DANLOS SYNDROME) FLAG

for anyone who is on the EDS spectrum, no matter the type.

#edsawareness #DisabilityPrideMonth #flagtwt

This prerry much covers a standard walk for me let alone a major stomp

Although nowadays my knees have joined the party too!

The joys of Ehlers Danlos and being a zebra! 🦓

#ehlersdanlos syndrome #ehlersdanlos #ehlersdanlos awareness #awareness #edsawareness #EDS #Walk #Walk ing

I was diagnosed at 8. I have lost track of all the specialists I saw along the way, but so thankful for all those that have helped me make life with EDS a little easier. The Ehlers-Danlos Society #eds #eds awareness #ehlersdanlossyndrome #zebra #warrior

When you pick up a leaflet at a stall at Naidex and this is on the back of their leaflet! #winning #eds Ehlers-Danlos Support UK #EhlersDanlos Winback #eds awareness

Skrrrrt, I'm on wheels! ♿👩‍🦽 My first very own wheelchair 🥰

#DisabilityTwitter #Hypermobility #EDSawareness #Chronicallyillfam

For the month of May I will be posting an exercise a day for those with EDS! Keep a look out and share with everyone who might benefit. #EDSawareness #Exercise