QAR #Look4TheHelpers(@Q_RomieRome) 's Twitter Profile Photo

📝 On “get well soon” for people like me who’s hope is to get back to functioning at a higher level. All I can do is share my experience & post for to hopefully reach one person
EDS patients are called “zebras” ❤️🦓

📝 On “get well soon” for people like me who’s hope is to get back to functioning at a higher level. All I can do is share my experience & post for #EhlersDanlosSyndromeAwarenessMonth to hopefully reach one person 
EDS patients are called “zebras” ❤️🦓
#hEDS #EDS
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The Technicolor Zebra(@techncolorzebra) 's Twitter Profile Photo

(2) Day 23: How could health professionals help more?
This is such an conversation that I felt compelled to go back to it! The biggest challenge I experience with health professionals is .
AwarenessMonth

(2) Day 23: How could health professionals help more?
This is such an #important conversation that I felt compelled to go back to it! The biggest challenge I experience with health professionals is #shaming.
#EhlersDanlosSyndrome #EhlersDanlosSyndromeAwarenessMonth
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Ciara 🍉 🌈Toitū Te Tiriti(@CiaraArmstrong_) 's Twitter Profile Photo

This is the longest flare up I’ve ever had. It’s taking a massive toll on me not just physically, but, more than ever before, mentally.
I’m trying to be okay. I’m really trying.



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