Update about Millie - 22/04/24
Petition
change.org/p/save-millie-…
#MillieSevereME #SevereME #pwME #saveMillie #BringMillieHome #DontLetMEDie #ExposeMENow
Petition
change.org/p/save-millie-…
Fundraiser
justgiving.com/crowdfunding/b…
#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie
#SaveCarlasLife
#MEAwarenessHour
I echo this👇🏻
We shouldn’t have to beg.
We shouldn’t be afraid of needing hospital ‘care’.
We shouldn’t have to use energy we don’t have to protest at the cruelty, negligence & mistreatment of a very sick woman with #SevereME
Update about Millie:
Petition
change.org/p/save-millie-…
Fundraiser
justgiving.com/crowdfunding/b…
#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie #DontLetMEDie
We won’t improve access to care for #verysevereME #SevereME without a protocol.
#savemillie #SaveCarlasLife Karen and others in the same position need help fast. This should have been in place decades ago. Please sign and share
organise.network/actions/petiti…
NHS hospitals are extremely dangerous places for #SevereME patients. Carla, Millie and Karen are just the cases we know about, there could be so many more being abused without us ever knowing about it #MEAwarenessHour #SaveCarlasLife #BringMillieHome
Update about Millie:
Petition
change.org/p/save-millie-…
Fundraiser
justgiving.com/crowdfunding/b…
#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie
Today, we hear Nevra's story, as she perseveres through #SevereME in Pakistan.
'I can’t keep up with hygiene due to PEM and keep getting infections. My care is so neglected.'
Thank you Nevra, for sharing your story as a #GlobalVoiceForME .
#WorldMEDay
buff.ly/3UwyLQd
#SaveCarlasLife #ExposeMENow #MillionsMissing #SevereME #MEAwarenessHour
This treatment and abuse has been going on for years and even when patients and families are brave enough to talk to the media it gets edited and cleaned up.