World ME Alliance
@WorldMEAlliance
An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.
ID:730078593347424257
http://worldmealliance.org 10-05-2016 16:54:35
2,0K Tweets
1,9K Followers
248 Following
Kelly had always been an active person before she developed ME. Learn more about how her life changed and the lessons she shares as a #GlobalVoiceForME . #WorldMEDay #MyalgicE #MECFS
buff.ly/4dabqei
Nevra shares her experience of being sick for most of her life, without receiving enough support from her community in Pakistan. Listen to her voice as a #GlobalVoiceForME . #WorldMEDay #MyalgicE #MECFS
buff.ly/3UwyLQd
Neúnavní, our Czech member organisation, are in the centre of Prague today as #WorldMEDay activities continue across the globe!
They have a photo exhibition and patient stories sharing the reality of living with #MyalgicEncepahlomyelitis in Czechia!
#GlobalVoiceForME #MECFS
Yesterday was #WorldMEDay so naturally today is #WorldPEMDay !
(Yes, i am going to make this joke every year. What of it?)
Hope everyones crash isn't too bad today. Thank you for anything that you were able to do yesterday, no matter how small 💙
Shout out to all the pets who joined #WorldMEDay as a #GlobalVoiceForME !
The comfort, companionship and love you bring, when so many people with #MyalgicEncephalomyelitis live in such isolation, is of great importance.
#pwME #Cats #Dogs #Pets #LongCovid #MECFS #EMSFC #MECVS
Happy Mother's Day to all the mom's in our community! Sending love to everyone as today can be hard for many reasons! Take care as you participate in #TeachMETreatME #MillionsMissing and #WorldMEDay !
#MothersDay #HappyMothersDay
🔵Hoy, en el #DíaInternacional de la #EncefalomielitisMiálgica , lanzamos este video para crear conciencia en la sociedad, en las instituciones públicas y en los profesionales médicos.. ¡AYÚDANOS A DIFUNDIRLO!💙 #EncefalomielitisMiálgica #12Mayo #12deMayo
youtu.be/Lvzw2rs-ty4
World ME Alliance are sharing 12 stories of #pwME from around the world.
Patient stories from Brazil, Japan, South Africa, Mexico, Pakistan, USA, Ukraine.
#WorldMEDay #MEAwarenessDay
worldmealliance.org/global-voice-f…
Today is #WorldMEDay . My partner Soph continues to get worse and I have written a small piece to try to describe - in a tiny way - what it is like a the moment. She has also allowed me to share one of the most recent photos of her. #pwme #MECFS #severeME #MEAwarenessDay
Today is #WorldMEDay ! Solve is joining the call upon individuals, organizations, and countries to become a #GlobalVoiceForME . Click the link to learn more about how you can help advance #MECFS awareness, research, and advocacy.
ow.ly/bOoT50RCiYq
If you watch one thing today, make it this powerful video on behalf of the millions of people living with #MECFS and be part of the #GlobalVoiceForME at worldmeday.org.
#WorldMEDay #MEAwarenessDay
#MyalgicE ncephalomyelitis #pwME #MyalgicE
So many powerful films out this #WorldMEDay - great production here from @Mirame_Arts, and really brings home what Martin Hippe shared with us during his quick symposium on emotional marketing at our Bridging Borders Event.
Link here ICYMI: youtu.be/C8-sqwUTxM0?si…