World ME Alliance(@WorldMEAlliance) 's Twitter Profileg
World ME Alliance

@WorldMEAlliance

An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.

ID:730078593347424257

linkhttp://worldmealliance.org calendar_today10-05-2016 16:54:35

2,0K Tweets

1,9K Followers

248 Following

World ME Alliance(@WorldMEAlliance) 's Twitter Profile Photo

Kelly had always been an active person before she developed ME. Learn more about how her life changed and the lessons she shares as a .
buff.ly/4dabqei

Kelly had always been an active person before she developed ME. Learn more about how her life changed and the lessons she shares as a #GlobalVoiceForME. #WorldMEDay #MyalgicE #MECFS buff.ly/4dabqei
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Martin Hippe(@pausedME) 's Twitter Profile Photo

Ich bin immer noch beeindruckt von eurem Engagement beim ! Dankeschön 🙏

I am still impressed by your commitment for the WorldMEDay! Thank you!

is a global health crisis!

Ich bin immer noch beeindruckt von eurem Engagement beim #WorldMEDay! Dankeschön 🙏 I am still impressed by your commitment for the WorldMEDay! Thank you! #MECFS is a global health crisis!
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World ME Alliance(@WorldMEAlliance) 's Twitter Profile Photo

Nevra shares her experience of being sick for most of her life, without receiving enough support from her community in Pakistan. Listen to her voice as a .
buff.ly/3UwyLQd

Nevra shares her experience of being sick for most of her life, without receiving enough support from her community in Pakistan. Listen to her voice as a #GlobalVoiceForME.#WorldMEDay #MyalgicE #MECFS buff.ly/3UwyLQd
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World ME Alliance(@WorldMEAlliance) 's Twitter Profile Photo

12ME are asking people in Belgium to write to their MP ahead of the Belgium elections (9th June) about the struggles with and the impact it has on them. They have a template letter and guide available on their website: buff.ly/3wuvsjm

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World ME Alliance(@WorldMEAlliance) 's Twitter Profile Photo

Neúnavní, our Czech member organisation, are in the centre of Prague today as activities continue across the globe!

They have a photo exhibition and patient stories sharing the reality of living with in Czechia!

Neúnavní, our Czech member organisation, are in the centre of Prague today as #WorldMEDay activities continue across the globe! They have a photo exhibition and patient stories sharing the reality of living with #MyalgicEncepahlomyelitis in Czechia! #GlobalVoiceForME #MECFS
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NPO法人 筋痛性脳脊髄炎の会(@CFSnon) 's Twitter Profile Photo

WHOが を認めてから55年
治療薬も治療法もない
更に何百万人もがCOVID-19が引き金でMEを発症
現在、世界中の患者は5500万人と推定
私達は病気の認知、研究、敬意を求める
私は日本のME患者
これは世界的な健康危機
世界啓発デーに共に行動して下さい
x.com/worldmeallianc…

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Arlette(@ArlettePoolen) 's Twitter Profile Photo

Yesterday was so naturally today is !

(Yes, i am going to make this joke every year. What of it?)

Hope everyones crash isn't too bad today. Thank you for anything that you were able to do yesterday, no matter how small 💙

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Maureen Hanson(@DrMaureenHanson) 's Twitter Profile Photo

As World ME day and Mother’s Day coincide this year, let’s recognize that many mothers are caring for not only juveniles with ME, but also for their adult children with ME who have been ill for decades.

As World ME day and Mother’s Day coincide this year, let’s recognize that many mothers are caring for not only juveniles with ME, but also for their adult children with ME who have been ill for decades.
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#MEAction Network(@MEActNet) 's Twitter Profile Photo

Happy Mother's Day to all the mom's in our community! Sending love to everyone as today can be hard for many reasons! Take care as you participate in and !

Happy Mother's Day to all the mom's in our community! Sending love to everyone as today can be hard for many reasons! Take care as you participate in #TeachMETreatME #MillionsMissing and #WorldMEDay! #MothersDay #HappyMothersDay
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ONG PEM(@AsociacionPEM) 's Twitter Profile Photo

🔵Hoy, en el de la , lanzamos este video para crear conciencia en la sociedad, en las instituciones públicas y en los profesionales médicos.. ¡AYÚDANOS A DIFUNDIRLO!💙
youtu.be/Lvzw2rs-ty4

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BBC Newsline(@bbcnewsline) 's Twitter Profile Photo

A former champion Irish dancer who has covid-induced ME, was among a crowd of protesters at Stormont today, calling for better support for those with the condition. 19-year-old Rosie Pidgeon now uses a wheelchair to manage her pain and fatigue. Lyndsey Telford reports.

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Guus(@guustweet) 's Twitter Profile Photo

World ME Alliance are sharing 12 stories of from around the world.

Patient stories from Brazil, Japan, South Africa, Mexico, Pakistan, USA, Ukraine.



worldmealliance.org/global-voice-f…

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Daniel Padfield(@padpadpadpad) 's Twitter Profile Photo

Today is . My partner Soph continues to get worse and I have written a small piece to try to describe - in a tiny way - what it is like a the moment. She has also allowed me to share one of the most recent photos of her.

Today is #WorldMEDay. My partner Soph continues to get worse and I have written a small piece to try to describe - in a tiny way - what it is like a the moment. She has also allowed me to share one of the most recent photos of her. #pwme #MECFS #severeME #MEAwarenessDay
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Solve ME/CFS Initiative(@PlzSolveCFS) 's Twitter Profile Photo

Today is ! Solve is joining the call upon individuals, organizations, and countries to become a . Click the link to learn more about how you can help advance awareness, research, and advocacy.
ow.ly/bOoT50RCiYq

Today is #WorldMEDay! Solve is joining the call upon individuals, organizations, and countries to become a #GlobalVoiceForME. Click the link to learn more about how you can help advance #MECFS awareness, research, and advocacy. ow.ly/bOoT50RCiYq
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PrecisionLife(@precisionlifeAI) 's Twitter Profile Photo

If you watch one thing today, make it this powerful video on behalf of the millions of people living with and be part of the at worldmeday.org.



ncephalomyelitis

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Millions Missing France(@MillionsMissgFr) 's Twitter Profile Photo

📽 Montage vidéo réalisé par World ME Alliance pour le 12 mai 2024, journée de l' . youtu.be/o0IEUesvLXs
🙏 Bravo à l’équipe qui a fait un super job tout au long de cette campagne.
🙏 Merci à toutes les personnes qui ont décidé d’être porte parole mondialement pour l’EM ⤵️

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World ME Alliance(@WorldMEAlliance) 's Twitter Profile Photo

So many powerful films out this - great production here from @Mirame_Arts, and really brings home what Martin Hippe shared with us during his quick symposium on emotional marketing at our Bridging Borders Event.

Link here ICYMI: youtu.be/C8-sqwUTxM0?si…

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