Louise Doran(@FoxyLady0811) 's Twitter Profile Photo

3 years since mum died. We haven't forgotten the pain, stress, anxiety caused by Pulmonary Fibrosis as you struggle to breathe eat talk move. Oxygen tubing, many cylinders. Worrying about running out of oxygen as companies don't deliver it! Imagine

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Louise Doran(@FoxyLady0811) 's Twitter Profile Photo

September is Pulmonary Fibrosis Awareness Month ๐Ÿ’œ Please share. Progressive lung scarring makes it more difficult to eat, breathe, talk, move, live. Imagine being connected to oxygen cylinders and concentrators all day and night.

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Roisin Cahalan(@roisinc1) 's Twitter Profile Photo

Recruiting now for the BUILD 2K Buddy walking project for people with . People of all levels of physical ability welcome. Details below. IrishResearchCouncil ILFA Ireland University Of Limerick (@PAfH_UL) 's Twitter Profile">Physical Activity for Health Research Centre University Of Limerick University Of Limerick EHS Research CPRC_ISCP

Recruiting now for the BUILD 2K Buddy walking project for people with #ILD #PulmonaryFibrosis. People of all levels of physical ability welcome. Details below. @IrishResearch @ILFA_Ireland @PAfH_UL @UL @EHS_Research @CPRC_ISCP
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Deji Adegunsoye, MD, PhD(@drdayjee) 's Twitter Profile Photo

has been amazing!!! ๐Ÿซ

Spectacular science and delightful mealtime research conversations with colleagues from all around the world about overcoming .


#ATS2024 has been amazing!!! ๐Ÿซ

Spectacular science and delightful mealtime research conversations with colleagues from all around the world about overcoming #PulmonaryFibrosis. 

#FantasticSanDiego 
#MakingProgressAtAllTimes
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Lucilla Piccari @LucillaPiccari@med-mastodon(@LucillaPiccari) 's Twitter Profile Photo

Colleagues working in the space, this infographic from SeparRespira
on what is might come in handy if you have Spanish-speaking patients and you want to print it for them to take home

Great job Jaume Bordas Martinez
& colleagues! ๐Ÿ‘๐Ÿ‘
drive.google.com/file/d/10yoqJ0โ€ฆ

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Roisin Cahalan(@roisinc1) 's Twitter Profile Photo

Attention clinicians/groups working with . Recruitment posters/flyers for ILFA Ireland University Of Limerick BUILD 2K Buddy walking programme are available. DM me if you would like some for your clients/patients. IrishResearchCouncil CPRC_ISCP irishthoracicsociety HSE Ireland

Attention clinicians/groups working with #ILD #PULMONARYFIBROSIS. Recruitment posters/flyers for @ILFA_Ireland @UL BUILD 2K Buddy walking programme are available. DM me if you would like some for your clients/patients. @IrishResearch @CPRC_ISCP @irishthoracicS @HSELive
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Deji Adegunsoye, MD, PhD(@drdayjee) 's Twitter Profile Photo

A cool and relaxing evening spent with some of the best minds in ! ๐Ÿซ

Whatโ€™s not to love about that. ๐Ÿ‡บ๐Ÿ‡ธ๐Ÿ‡จ๐Ÿ‡ฆ๐Ÿ‡ฌ๐Ÿ‡ง

๐Ÿป๐Ÿฅƒ

A cool and relaxing evening spent with some of the best minds in #pulmonaryfibrosis! ๐Ÿซ

Whatโ€™s not to love about that. ๐Ÿ‡บ๐Ÿ‡ธ๐Ÿ‡จ๐Ÿ‡ฆ๐Ÿ‡ฌ๐Ÿ‡ง

๐Ÿป๐Ÿฅƒ
#LearningFromTheBest
#ATS2024  #MTWC #CurePF #REMAPILD
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Deji Adegunsoye, MD, PhD(@drdayjee) 's Twitter Profile Photo

Dr. Kerri Johansson discusses challenges and possible solutions to exposure assessment. ๐Ÿซ

Highlights several evidence-informed ILD questionnaires that can be leveraged in clinical practice.

Much work remains to be done!!!


Dr. Kerri Johansson discusses challenges and possible solutions to exposure assessment. ๐Ÿซ

Highlights several evidence-informed ILD questionnaires that can be leveraged in clinical practice. 

Much work remains to be done!!!

 #ATS2024 
#PulmonaryFibrosis
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Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profile Photo

treatments and care have seen huge improvements in recent years, but the healthcare system hasn't kept pace.

๐Ÿ“ขWe've launched a new vision reimagining the future of healthcare, and we canโ€™t do it without you.

Find out more here:
actionpf.org/get-involved/iโ€ฆ

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EU-PFF(@EU_IPFF) 's Twitter Profile Photo

We start the second day of the third European Patient Summit with a brief recap of Day 1, followed by a roundtable session on health policy. Let's hope for another engaging and educational day!

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Deji Adegunsoye, MD, PhD(@drdayjee) 's Twitter Profile Photo

Dr. Thennapan discusses the development of a machine-learning based definition of PPF (progressive pulmonary fibrosis) and its potentially increased prognostic value.




Dr. Thennapan discusses the development of a machine-learning based definition of PPF (progressive pulmonary fibrosis) and its potentially increased prognostic value. 

 #ATS2024 
#PPF
#pulmonaryfibrosis
#JustinOldham
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Dr. Samir Nusair, MD ๐Ÿ‡ฎ๐Ÿ‡ฑ๐ŸŽ—๏ธ(@SamirNus) 's Twitter Profile Photo

Pulmonary vascular resistance elevation (>2WU) predicts mortality regardless of mean pulmonary artery pressure in mild . Signal can distinct between people with mPAP<20mmHg or mPAP>25mmHg and PVR< 2WU.



thorax.bmj.com/content/79/5/4โ€ฆ

Pulmonary vascular resistance elevation (>2WU) predicts mortality regardless of mean pulmonary artery pressure in mild #ILD. Signal can distinct between people with  mPAP<20mmHg or mPAP>25mmHg and PVR< 2WU.  
#pulmonaryfibrosis 
#pulmonaryhypertension 

thorax.bmj.com/content/79/5/4โ€ฆ
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Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profile Photo

can affect how you sleep.

From keeping a regular sleep schedule to having a hot bath, there are lots of tips to help improve your sleep.

Find out more here:
actionpf.org/information-suโ€ฆ

health

#Pulmonaryfibrosis can affect how you sleep. 

From keeping a regular sleep schedule to having a hot bath, there are lots of tips to help improve your sleep. 

Find out more here:
actionpf.org/information-suโ€ฆ

#ild #lungdisease #respiratory #respiratoryhealth #lungs
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Dr. Samir Nusair, MD ๐Ÿ‡ฎ๐Ÿ‡ฑ๐ŸŽ—๏ธ(@SamirNus) 's Twitter Profile Photo

The impact of anti-fibrotics on lung function and survival in patients with idiopathic in real-life setting.
Comparison with a historical cohort.
sciencedirect.com/science/articlโ€ฆ

The impact of anti-fibrotics on lung function and survival in patients with idiopathic #pulmonaryfibrosis in real-life setting.
Comparison with a historical cohort. 
sciencedirect.com/science/articlโ€ฆ
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Bounce Black | Mental Health(@bounceblackorg) 's Twitter Profile Photo

๐Ÿซ๐Ÿงต Our friends Action for Pulmonary Fibrosis want to hear from people of colour who are affected by the under-researched condition, to help increase the inclusivity of their services.

Here's a thread about the condition and how you can get involved:

๐Ÿซ๐Ÿงต Our friends @ActionPFcharity want to hear from people of colour who are affected by the under-researched condition, #PulmonaryFibrosis to help increase the inclusivity of their services.

Here's a thread about the condition and how you can get involved:
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