My warrior of a sister, Clare, is very poorly and in hospital again with what doctors think is a rapid onset respiratory infection.
Please send prayers or good thoughts, whichever suits.
Here she is in happier times.
#rettsyndrome #disability

Help us support this amazing cause!
Limited Edition
Gold 10Nfts, 1 for $10k + Gold Coin
Silver 150Nfts, 1 for $300 + Silver Coin
Basic200Nfts, 1 for $50
Smash the like and RT button!!!
#RettSyndrome #Blockchain #AI #NFT #Nft4Charity #Crypto #NFT Collection #NFT Community #NFT Arts

My new paper just got published! Exciting research assessing language in girls with Rett Syndrome using eye-tracking. Key findings on comprehension and communication! 🧠 #Research #RettSyndrome

linkinghub.elsevier.com/retrieve/pii/S…

Yesterday, Neurotech International reported positive results from their ongoing Phase I/II clinical trial in Australia of NTI164, a broad-spectrum cannabinoid drug therapy for the treatment of Rett syndrome. More results: investi.com.au/api/announceme…

Team Jaakkola on enemmän kuin vain nimi.

Se on elämäntapa ja kannanotto siihen, että jokaisella on oikeus tavoitella unelmiaan, riippumatta siitä, millaisia haasteita elämä tuo eteen. 🔥💯

#fightermindset #teamjaakkola #rettsyndrome

Thank you to Anovo, Anavex Life Sciences, and DepYmed, the bronze sponsors of this year's ASCEND 2024 Rett Syndrome National Summit! Time is running out to register - reserve your spot today at rettsyndrome.org/ascend.

REMINDER! The application deadline for funding through the IRSF Rett Syndrome Innovation Awards is tomorrow, May 15th, at 5 p.m. ET. For more information about this grant and submission instructions, visit rettsyndrome.org/research/for-r….

📣 #FinkLab Wednesday Posters📣
Stop by poster 693 to learn about #PrimeEditing in #Ppp2r5d from Isaac Villegas and poster 703 to learn about #EpigeneticEditing in #RettSyndrome from Klaudia Braczyk!
ASGCT #ASGCT2024 #NeurologicDiseases #Organoid #MouseModel

Avui a La Vanguardia som notícia!! 👏🏻👏🏻👏🏻

Luli i Paula de la Rett Catalana visibilitzant la SR.
Llegiu l’article sencer 👉🏻 lavanguardia.com/vida/20240512/….

#rettsyndrome #sindromederett

Did you miss the latest $NTI investor webinar?

In this webinar, our Executive Director, Dr Thomas Duthy, discussed our Phase I/II Rett Syndrome clinical trial results.

👉 Watch the Full Webinar:
youtu.be/LQTtXrXrPSg?si…
#RettSyndrome #ASXnews #smallcaps

Earn up to 5.75 CME credits by participating in new #RettSyndrome multidisciplinary care sessions on Medlive! Hear from David Lieberman, MD, PhD of [tag Boston Children’s Hospital], Henry Hasson, MD and IRSF's Carmen Luna, MPH: bit.ly/4bf3l6y

Silver Collection
opensea.io/collection/sil…
Introducing Silent Angel Rett, a groundbreaking NFT project that aims to raise awareness and funds for families affected by Rett Syndrome.
#Rett #Crypto #blockchain #AI #Nft #Nft 4charity #NFTCollection #NFTCommunity #NFTArts #Rett Syndrome

WE DID IT! Thanks to your efforts, 18 U.S. Representatives signed on to support listing Rett syndrome as a topic eligible for next year's Department of Defense research funding, almost double the number from FY24! Letter and rep list at rettsyndrome.org/advocacy.

Neurogene Presents Favorable Safety Data from Phase 1/2 Trial of NGN-401 Gene Therapy for Rett Syndrome - check the link for more ow.ly/Un8N50RyjQg Neurogene Inc. #GeneTherapy #RettSyndrome

Neurotech International ( #ASX : $NTI ) has reported further endpoint analysis of its Phase 1/2 trial NTIRTT1 showing significant additional benefits in #RettSyndrome girls after 12 weeks of daily oral treatment. | #health #biotech bit.ly/3QyrP2H

International Rett Syndrome Foundation Don't miss out! Earn free #CME credit by joining us for this important conversation led by field experts 👏

Alan Percy, MD, Pediatric Neurologist at University of Alabama at Birmingham, describes the history of Rett syndrome. #CheckRare #RareDisease #RettSyndrome
checkrare.com/history-of-ret…

Ponni Subbiah, MD, MPH, Senior Vice President Global Head of Medical Affairs and Chief Medical Officer, Acadia Pharmaceuticals, discusses trofinetide for the treatment of Rett syndrome #CheckRare #RareDisease #RettSyndrome
checkrare.com/trofinetide-fo…