Did you know that Leigh syndrome can be caused by over 110 different genes with more being discovered? This vast genetic diversity means that the disease can manifest itself in many different ways, affecting each person uniquely.
#leighsyndrome #mitochondrialdisease
We had a great weekend in Blackpool Friday 26th - Monday 29th April with the amazing Leigh Network Mito families.
#Mito #Mito Support #Mito chondrialDisease #leighSyndrome #Blackpool #TheTowerBallroom #TheBondHotelBlackpool
Leigh Network is supporting Deaf Awareness Week. Thank you to Kate for sharing her tips đź’š
#deafAwarenessWeekUk2024 #HearingLoss #Mito #Mito Support #Mito chondrialDisease
#CommunicationTips
If you have Leigh syndrome or are a parent or caregiver to someone who does please join a FB group: facebook.com/groups/1501358…
#leighsyndrome #mitochondrialdisease
Huge thanks to Soussanna and team Bupa Dental Care UK Ivybridge in Devon who raised an impressive £2,018 in the practice over the course of just 1 week! We are so grateful to the team for helping raise awareness of #mitochondrialdisease & funds to support our work. ❤️
Get in touch if you know an organisation that might have Christine in to speak about mitochondrial disease, and raise vital awareness. We would love to hear from you! đź’š
#mymitomission #mitoawareness #charityspeaker #rotary #communitygroup #mitochondrialdisease #realityofmito
⚡ Monday's Mito Message!⚡
âť“ How might mitochondrial dysfunction be linked with the deterioration of kidney function in those with diabetes?
#mitochondria ldisease #mitochondria #mitochondria lresearch #mitochondria ldysfunction #kidneydisease #diabetes #kidneyhealth
#Mitochondrialdisease can be difficult to diagnose. In this short film Danielle shares her story. Learn more about why it takes time to get a #raredisease diagnosis & our commitment to make a difference: ow.ly/JJWF50Ry8h7
#thelilyfoundation #diagnosis #research
A huge congratulations to Steph and Jake's Mito Mission for raising vital awareness and funds at a local fun day event! 🎪
#charityfundraising #smallcharity #supportlocal #fundraising #mitoaware #mitoaware ness #mitochondrialdisease #charityevent #thurston #thurston funday
Sending another special Good Luck message to Jodi & Team Kian who are raising awareness of #mito chondrialdisease & The #LilyFoundation at the #Taunton Town Charity #football match, in memory of baby Kian, loved & missed every day. Help fight #mito ow.ly/gb3J50RA8qV
Building connections, listening, and sharing insights is what conferences like @umdf #MitoMed 2024 are all about. We are looking forward to great conversations with the mito community! umdfconference.org
#WeHearYou #MitochondrialDisease #MELAS
We have a wide range of merchandise that can reflect the mission of your choice. Take a look by clicking the link below:
mymitomission.uk/product-catego…
#mymitomission #kanesmitomission #mymitomerch #mitochondrialdisease #joinourcause
6 continents around the world are represented in Leigh syndrome global patient registry!
324 participants are currently enrolled. Enroll today and bring us to 325!
curemito.org/leighsyndromer…
#leighsyndrome #mitochondrialdisease
Can you grant us a wish and buy us something from our Amazon Wishlist? It is full of pieces of equipment that we need to keep our charity running and continuing our vital work. Thank you đź’š
tinyurl.com/35vrzcmp
#mymitomission #amazonwishlist #wishlist #mitochondrialdisease
To read more about Louise's story with mitochondrial disease, click the link below
mymitomission.uk/louises-mito-m…
#mymitomission #louisesmitomission #mitochondrialdisease #melas #livingwithmito
Many thanks to Jason who proudly wore his #LilyFoundation vest in his recent MMA Fight. Jason is supporting us in memory of his precious daughter Evelyn who lost her battle with #mitochondrialdisease Find out how you can help us find a cure: ow.ly/I3Ro50RuupE
Make a difference with tea & cake by signing up to The #LilyFoundation 's Mito Communi-TEA in May. Jodi raised a fabulous ÂŁ715 & helped raise awareness of #mitochondrialdisease in memory of her precious baby Kian. Follow the link to get involved: bit.ly/43B1shG
Now is the time to walk TOGETHER toward treatments and cures for #mitochondrialdisease . Join us at an #EnergyforLife walk near you or build a team and participate virtually. The Journey Starts Here: energyforlifewalk.org #MoreEnergyTogether
If you or your loved one have been diagnosed with Leigh syndrome within the past 6 months, we want to support to your family by offering a care package.
Please learn more and request your package here: forms.gle/9s2g1Q5WZ3etbL…
#leighsyndrome #mitochondrialdisease
#LilyFoundation is proud to support #DeafAwarenessWeek Hearing loss is a common symptom of #mitochondrialdisease with an estimated 50% of patients experiencing hearing loss or deafness. Here are some tips for communicating with deaf people National Deaf Children's Society youtu.be/XRWVU_6Dldw