The PSP Association(@PSPAssociation) 's Twitter Profileg
The PSP Association

@PSPAssociation

Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA 🧠

ID:234387457

linkhttps://pspassociation.org.uk/news/wear-eds-lace-to-raise-awareness-of-psp-cbd/ calendar_today05-01-2011 14:51:31

11,9K Tweets

4,3K Followers

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International Dementia Conference Series(@_IDCS_) 's Twitter Profile Photo

Congrats to Rosa Neto, Pedro - & Maura Malpetti, members of our organizing committee, on winning Alzheimer’s Association Excellence in Neuroscience Mentoring & AAIC Neuroscience Next ‘One to Watch’ awards! 🎉👏 Alzheimer's Association We're proud of you!

Congrats to @pedrorosaneto & @M_Malpetti, members of our organizing committee, on winning Alzheimer’s Association Excellence in Neuroscience Mentoring & AAIC Neuroscience Next ‘One to Watch’ awards! 🎉👏 @alzassociation #AAICNeuro We're proud of you!
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Cambridge FTD(@CambridgeFTD) 's Twitter Profile Photo

Synaptic Loss is much more severe in β-Amyloid negative Corticobasal Syndrome (ie likely Corticobasal degeneration) than β-Amyloid positive CBS (ie likely AD); and correlates with phenotype
PET Negin Holland WBIC Wellcome The PSP Association
…mentdisorders.onlinelibrary.wiley.com/doi/10.1002/md…

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Dawn Eastwood(@DawnEastwood4) 's Twitter Profile Photo

Cannot believe this was 5 years ago, raising money for The PSP Association.
One of the best days ever and one I'll never forget.
This was for you Emily, always remembered x

Cannot believe this was 5 years ago, raising money for @PSPAssociation. One of the best days ever and one I'll never forget. This was for you Emily, always remembered x
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

Today’s is Becky Slowe and her family who ran the Cambridge Half Marathon in memory of their mum/nanna Brenda who had CBD.

They have raised £1,160!

You can still sponsor them here:

justgiving.com/page/teamcambr…

Thank you!

Today’s #MondayMotivation is Becky Slowe and her family who ran the Cambridge Half Marathon in memory of their mum/nanna Brenda who had CBD. They have raised £1,160! You can still sponsor them here: justgiving.com/page/teamcambr… Thank you! #CambridgeHalfMarathon #TeamPSPA
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

On 27 March, PSPA held a 30th Anniversary party to launch the new 30 for 30 challenge.

A party isn’t a party without a cake, OR TWO!

Find out more about our 30 for 30 challenge: pspassociation.org.uk/30-for-30/

Anniversary

On 27 March, PSPA held a 30th Anniversary party to launch the new 30 for 30 challenge. A party isn’t a party without a cake, OR TWO! Find out more about our 30 for 30 challenge: pspassociation.org.uk/30-for-30/ #PSPA30 #AnniversaryCake #PSPA30Anniversary #30for30
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

🔬An update on the Orion clinical trial 🔬

Amylyx has confirmed the Medicines and Healthcare products Regulatory Agency (MHRA) has not accepted their application. As such, the UK study of AMX0035 is unable to proceed at this time.

Read more at: pspassociation.org.uk/news/an-update…

🔬An update on the Orion clinical trial 🔬 @AmylyxPharma has confirmed the Medicines and Healthcare products Regulatory Agency (MHRA) has not accepted their application. As such, the UK study of AMX0035 is unable to proceed at this time. Read more at: pspassociation.org.uk/news/an-update…
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

A big thank you goes out to @RaynorWinn and Moth. The couple walked 120miles along the Thames Path to raise awareness of PSP & CBD. Raynor then completed the London Marathon with her son.

Together they have raised an amazing £12,000 for PSPA. justgiving.com/page/moth-and-…

A big thank you goes out to @RaynorWinn and Moth. The couple walked 120miles along the Thames Path to raise awareness of PSP & CBD. Raynor then completed the London Marathon with her son. Together they have raised an amazing £12,000 for PSPA. justgiving.com/page/moth-and-…
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

Are you a patient, empathetic listener? Do you have experience of working in health, social care or the helpline sector?

If you ✅✅✅ these boxes, we'd love to hear from you!

☎️Learn more about our Helpline Care Navigator role and how to apply ☎️: pspassociation.org.uk/about-us/work-…

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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

PSPA is partnering with Rareminds to offer a free Confidential Counselling Service for family members affected by PSP & CBD.

Learn More: pspassociation.org.uk/pspa-counselli…

Contact our Helpline on 0300 0110 122 or email: [email protected]

PSPA is partnering with Rareminds to offer a free Confidential Counselling Service for family members affected by PSP & CBD. Learn More: pspassociation.org.uk/pspa-counselli… Contact our Helpline on 0300 0110 122 or email: helpline@pspassociation.org.uk #PSPASupport #Rareminds
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

A big thank you goes out to @RaynorWinn and Moth. The couple walked 120miles along the Thames Path to raise awareness of PSP & CBD. Raynor then completed the London Marathon with her son.

Together they have raised an amazing £12,000 for PSPA. justgiving.com/page/moth-and-…

A big thank you goes out to @RaynorWinn and Moth. The couple walked 120miles along the Thames Path to raise awareness of PSP & CBD. Raynor then completed the London Marathon with her son. Together they have raised an amazing £12,000 for PSPA. justgiving.com/page/moth-and-…
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

🤩 PSPA Family and Friends Day 15 June in Leeds 🤩

Thoughtfully designed for people with PSP & CBD, family members of all ages, carers, and friends.

Register for the event at Village Hotel Leeds South here

eventbrite.co.uk/e/pspa-family-…

ASupport

🤩 PSPA Family and Friends Day 15 June in Leeds 🤩 Thoughtfully designed for people with PSP & CBD, family members of all ages, carers, and friends. Register for the event at Village Hotel Leeds South here eventbrite.co.uk/e/pspa-family-… #FriendsAndFamilyDay #PSPASupport #PSP #CBD
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Janet Daby MP(@JanetDaby) 's Twitter Profile Photo

A big congratulations to Ed my parliamentary staffer who ran the TCS London Marathon in 3:44:00 hrs. 🥇

He has raised money for The PSP Association. And it is not too late to donate! here ➡️ 2024tcslondonmarathon.enthuse.com/pf/edward-toml…

A big congratulations to Ed my parliamentary staffer who ran the @LondonMarathon in 3:44:00 hrs. 🥇 He has raised money for @PSPAssociation. And it is not too late to donate! here ➡️ 2024tcslondonmarathon.enthuse.com/pf/edward-toml…
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

Today’s is PSPA Trustee, Maria who ran the London Marathon yesterday for PSPA and has raised over £2800.

She ran for her Mum, Linda who has advanced CBD.

Click here to sponsor Maria:justgiving.com/page/maria-ten….

Today’s #MondayMotivation is PSPA Trustee, Maria who ran the London Marathon yesterday for PSPA and has raised over £2800. She ran for her Mum, Linda who has advanced CBD. Click here to sponsor Maria:justgiving.com/page/maria-ten…. #LondonMarathon #TeamPSPA #CorticobasalDegeneration
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

We had an amazing day at the London Marathon yesterday!

We want to send a MASSIVE thank you to all of our runners who did themselves and PSPA proud.

Together they have raised almost £170,000 for PSPA! Thank you!

Support our team, here: justgiving.com/campaign/teamp…

We had an amazing day at the London Marathon yesterday! We want to send a MASSIVE thank you to all of our #TeamPSPA runners who did themselves and PSPA proud. Together they have raised almost £170,000 for PSPA! Thank you! Support our team, here: justgiving.com/campaign/teamp…
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Steve Maull(@SteveMaull) 's Twitter Profile Photo

Managed 3hrs 31mins yesterday for my first ever Marathon. I am very happy to have represented The PSP Association. Thank you to everyone who has supported me and my sister.

Managed 3hrs 31mins yesterday for my first ever Marathon. I am very happy to have represented @PSPAssociation. Thank you to everyone who has supported me and my sister. #londonmarathon2024
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Meg Palmer(@megs_palmer) 's Twitter Profile Photo

26.2 ❤️
A year ago I signed up to run the TCS London Marathon after seeing the Saturday set up. I got a place to run for the The PSP Association and have raised nearly £2400 💜 my legs are in agony, but it was so worth it!

26.2 ❤️ A year ago I signed up to run the @LondonMarathon after seeing the Saturday set up. I got a place to run for the @PSPAssociation and have raised nearly £2400 💜 my legs are in agony, but it was so worth it!
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The PSP Association(@PSPAssociation) 's Twitter Profile Photo

A big HIGH FIVE 🙌 and good luck to one of our younger fundraisers - Izzy!

Izzy is running the mini marathon for PSPA on Saturday for her Nana who is living with PSP.

So far, Izzy is raised more than £4,000 for PSPA which is amazing! Thank you!

justgiving.com/page/clare-jac…

A big HIGH FIVE 🙌 and good luck to one of our younger fundraisers - Izzy! Izzy is running the mini marathon for PSPA on Saturday for her Nana who is living with PSP. So far, Izzy is raised more than £4,000 for PSPA which is amazing! Thank you! justgiving.com/page/clare-jac…
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