Older children & teens affected by #cancer can develop anxiety around hospital and medical procedures. Some things we can’t control, but we can do much to help kids prepare, #ManageStress , cope well & take an active role in their care. ow.ly/SsY450wKqdY #ChildhoodCancer

#RbResearch #AlphabetOfHope L: #Lifelong : Heritable retinoblastoma survivors have increased lifelong risk of second cancers. What are the risk factors? What do survivors need to know to live well and minimize risk? How do we best share the knowledge?
wechope.org/AlphabetOfHope

Most retinoblastoma survivors have ongoing health needs. Long-term #FollowUpCare may take place in a #LateEffectsClinic or with a well-informed physician. But it is critical there be a central means of organizing the often complex multidisciplinary care. ow.ly/6eBv50uq5RE

#GBM is one of the most aggressive, deadly and treatment-resistant cancers that form in the brain. $CNSP #GBM #GlioblastomaMultiforme #Oncology

I'm Resting My Eyes.
miahcombat.com/collection/fat…

Our 2023 #AlphabetOfHope ' #RbResearch ' highlights 26 Qs & Views for #retinoblastoma research. They incorporate the CRRAB top 10 priorities identified by #Canadian parents and survivors, including #Lifelong second cancer risk. Find out more:
rbcanadaresearch.com/top10prioritie…

#SecondCancer risk: many #retinoblastoma survivors feel huge anxiety when noting an unexplained lump or twinge, or watching persistent symptoms that don't resolve as expected. Tracking the stress impact will be valuable in routine #CancerSurvivor care. ow.ly/6eBv50uq5RE

For many survivors, #retinoblastoma has #lifelong impacts. While we can hopefully rely on people to help us along the way, it’s up to the individual #CancerSurvivor to be an active participant in your journey, navigating the adult post-Rb treatment world. ow.ly/MRUp50zPcWT

Be a Fundraising Angel! Host a Daisy Bake, Wear Gold Day or another event and help us create a better future for all affected by #retinoblastoma . Fundraising can be great rewarding fun! Our ideas and guide will help you plan and host your own events. wechope.org/give-hope/fund…

At 3 months old, Aidan’s left eye began turning in & his right eye quivered. The doctor said his #LazyEye could be corrected when older. So did an #ophthalmologist at 6mo. At 10mo, a 3rd devastating #EyeExam found #retinoblastoma - #cancer ! ow.ly/smIv30nYE7G #FamilyMed

#RbResearch #AlphabetOfHope L: #Lifelong : Heritable retinoblastoma survivors have increased lifelong risk of second cancers. What are the risk factors? What do survivors need to know to live well and minimize risk? How do we best share the knowledge?
wechope.org/AlphabetOfHope

Every #OneRbWorld event covers diverse topics important to #retinoblastoma patients/families/survivors. View sessions from the last 3 events focused on survivorship care, including #psychosocial outcomes, #SecondCancers , and vision beyond treatment.
youtube.com/playlist?list=…

There's nothing like airing out a problem or seeking the thoughts of others with similar experiences, right from your #smartphone . Or the rare joy of sitting with another survivor, sharing precious human connection. ow.ly/6eBv50uq5RE #CancerSurvivorsDay #StrongerTogether

#HospitalAnxiety can develop from repeated exposure to stressful events where a child feels overwhelmed, unsuccessful, or a lack of independence. Read on for 6 ways you can support your child's coping during stressful hospital visits. ow.ly/SsY450wKqdY #HelpKidsCope

#Retinoblastoma is an aggressive #ChildhoodCancer with potentially #Lifelong impacts. What do survivors view as most important in ongoing care? What are some common struggles they encounter in receiving informed health care? Find out here! ow.ly/6eBv50uq5RE #CancerSurvivor

Many stop work or cut hours to care for a loved one with cancer, adding to their financial strain.

#RbResearch #AlphabetOfHope L: #Lifelong : Heritable retinoblastoma survivors have increased lifelong risk of second cancers. What are the risk factors? What do survivors need to know to live well and minimize risk? How do we best share the knowledge?
wechope.org/AlphabetOfHope

#RbResearch #AlphabetOfHope L: #Lifelong : Heritable retinoblastoma survivors have increased lifelong risk of second cancers. What are the risk factors? What do survivors need to know to live well and minimize risk? How do we best share the knowledge?
wechope.org/AlphabetOfHope

Join #OneRbWorld2024 , Oct 15-17 in Honolulu, Hawaii. Before #SIOP2024 (17-20 Oct). SAVE THE DATE to collaborate for best #retinoblastoma #research & #care for children, families and survivors. #FamilyCentredCare #PatientLedResearch #PatientAdvocates
wechope.org/onerbworld/

#Retinoblastoma survivors can find reassuring central care at #LateEffects Clinics, especially those with lifelong risks. But few receive this kind of care. When we do, it's usually because we #SelfAdvocate , rather than something offered by a doctor. ow.ly/6eBv50uq5RE

#Parents , a white pupil glow in #KidsPhotos or dim light may indicate cancer or other serious eye disease! If you see this, #KeepCalm & request an urgent #RedReflex #EyeExam . Here’s what to expect so you can prepare & support your child: ow.ly/3sjN30dDPHQ #KnowTheGlow

Misaligned eyes = #squint , NOT #LazyEye , and may be a sign of child eye #cancer . All babies with squint should have a prompt, thorough #FundalReflex (red reflex) #EyeExam to rule out #retinoblastoma . #EarlyDiagnosis saves sight & life. ow.ly/Tzvc30fSnII #PCP #FamilyMed #GP

#Retinoblastoma treatment is often delivered entirely in the #ophthalmology setting, reducing potential for children and families to benefit from psychosocial screening, support & trauma prevention care offered through #PediatricOncology . ow.ly/6eBv50uq5RE #OcularOncology