Were you invited to take part in the RAIRDA survey 2024? The survey is closing very soon! If you haven’t already, please let us know about your experience #RAIRDaware RAIRDA

🔗ipsos.uk/RAIRDAsurvey20…

🆕Can we optimize the dose of belimumab in stable SLE patients? Collaborative work of 18 centers in Spain evaluating a cohort of 324 patients on belimumab treatment
Led by Iñigo Rua Irene Altabás José María Pego Reigosa
#lupus
Soc.Esp.Reumatología Beatriz Frade Sosa
Rheumatology & Rheumatology Advances in Practice
academic.oup.com/rheumatology/a…

✅ I just got the question 'but what is #SLAKE '? SLAKE stands for Systemic Lupus Assessment of essential KnowledgE. It is a (free/publicly open) online system which will enable anyone with #Lupus to test the level of ESSENTIAL KNOWLEDGE about the disease 🧑‍🎓 across 11 domains!

#WEBINAR ALERT!👩‍💻

On #WorldLupusDay , we launched a video featuring Beth, Khiry and Maryann who shared their experiences receiving a diagnosis for #lupus .
Join us next Tuesday as they discuss their diagnosis experience and answer your questions!

We hope to see you there!

⚠️ #SLE can potentially affect a wide range of daily activities, from educational pursuits & career development to maintaining family relationships and social activities.

✅ Complete this survey & help us understand and show the real impact of lupus

 s.surveylegend.com/-Nr54WsZrcnC-4…

On #WorldLupusDay , we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a diagnosis for #lupus .

You can watch the video here: youtu.be/7VxG2WbrsGI?si…

#MakeLupusVisible #LupusAwareness #Diagnosis

New podcast exploring the role of Artificial Intelligence ( #AI ) and #MachineLearning ( #ML ) in guiding #diagnostic and #care decisions for systemic lupus erythematosus ( #SLE ).

bit.ly/3QAPFLb

✅ Happy to report that we are moving forward to #SLAKE STEP 4 👍 The international panel of experts, PANs from Lupus Europe and AgrupacionLupusChile + the members of the ERN ReCONNET 🇪🇺 #Lupus group are triaging the preliminary bank of 500 questions, to retain only the essential ones 👌

✅ #Fatigue & #Lupus ⬇️
1) Assess with PROs, e.g: FACIT-Fatigue, MFI, FSS
2) Rule out common causes: anemia, sleep apnea, thyroid pbs
3) Treat disease activity, if any
4) Assess and manage pain, stress, anxiety, depression
5) promote physical activity
LINK:doi.org/10.1136/lupus-…

✅ Holistic #Lupus Management in 2024 👍 #Lupus AwarenessMonth

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻 Izpolnite anketo.

🔊 Delite z vašo skupnostjo.

🙏 Help us achieve more answers to ensure the Slovak population is represented in the results

s.surveylegend.com/-Nt-wdNdIqT4v3…

#LupusAwarenessMonth

✅ Management of REFRACTORY #LUPUS ⬇️
#Lupusawareness month

🦋It's #LupusAwarenessMonth ❗

🦵 #KickLupus :  make it visible

Take part in the Living With Lupus in 2024 survey.

🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

🧵Find the link for all 21 languages in this thread⤵️

#Lupus is a complex and heterogeneous systemic autoimmune disease in which the body's immune system attacks your own tissues and organs, causing inflammation and damage in any part of the body

Visit lupus100.org for more!

#WorldLupusDay
#MakeLupusVisible
#Lupus 100

🦋Today is #WorldLupusDay !🦋

Lupus Academy is committed to improving patient outcomes in #SLE and sharing best clinical practice through the dissemination and discussion of cutting edge research

Learn more about #lupus at LupusCME.org
#MakeLupusVisible #RheumTwitter

🦋 𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 #𝐖𝐨𝐫𝐥𝐝𝐋𝐮𝐩𝐮𝐬𝐃𝐚𝐲 ❗

And this year, it is easier than ever to raise #LupusAwareness thanks to #Lupus100 !

Check lupus100.org & find reliable information about #lupus in many languages!

#MakeLupusVisible

Closing soon!

Lupus Europe is conducting a #survey to gather insights into the experiences of individuals living with #lupus . Your participation will help to refine understanding and improve treatments and support for lupus.

Complete the survey here: surveylegend.com/s/5h8u

😍 For #LupusAwarenessMonth : American College of Rheumatology blog on #lupus #SLE Self-Care recommendations❣️

CLICK HERE: rheumatology.org/patient-blog/l…

♦️ Few days left to fill the survey!

✍🏻Συμπληρώστε την έρευνα.

🔊Κοινοποιήστε στην κοινότητά σας.

🙏 Help us, @cyplar and @eleana_rheumatism ensure the Greek speaking population is represented

s.surveylegend.com/-Nr5KNkcBGDrsY…

✅ Anyone 🙋with #LUPUS actively involved in #physicalactivity ?
🏃💃⛹️🚴🧘🤾🏋️🏌️
- If NOT, why NOT?
#Pain ? #Fatigue ?
➡️ The SECRET is to start with tiny goals (like 5-10 mins/day) and keep going until the body ADJUSTS, and then add +5 min every new week 👍 #LupusAwarenessMonth