Damn.

Lord Byron died exactly 200 years ago today, after falling ill in Greece while gathering an army to fight the Ottoman Empire.
Raise your game, Simon Armitage.

There is plenty to be said about his death, and you will not struggle to find that.

I, however, want to talk about..

It's a funny old thing, writing an article about recovery when you spent years thinking you wouldn't recover.

Thank you so much to the over 500 of you who have read it this week 🙏🌷🌸

#pwme #Fibromyalgia #CFS #spoonie

medium.com/p/7f4801ff4b3c

PLEASE SHARE

The gov has an open call for evidence on their proposed changes to fit notes.

This is open to disabled people, carers and medical professionals.

It's open til 8th July

gov.uk/government/cal…

Season 4 concludes with this cracker! Your thoughts?

People living with chronic pain deserve to be respected as experts in their own experience. Brent Hedley Chronic Pain Australia challenges clinicians & researchers to truly listen. Abandon 1-size-fits-all approaches! #chronicpain

Our paper has just been published open access. frontiersin.org/journals/psych…
Don't be a nocebo! Why healthcare organizations should value patients' expectations’

Kudos Giacomo Rossettini Dr. Maxi Miciak 🌻forever Jerry Durham

New episode! What do you think? Linda Hunter urges clinicians to spend time actively listening, not just to pain symptoms, but to their patient's goals and desired quality of life. Success lies in a true partnership. #chronicpain #patientgoals #patientexperience

Episode 11! What do you think? Lesley Singer challenges the over-reliance on the 0-10 pain intensity scale. She advocates for understanding the WHOLE person, considering pain bothersome-ness more than pain intensity. #patientvoice #chronicpain #therapeuticrelationship

'If we can keep nudging people in the right direction and drip-feeding the right information, over time we can have a huge impact on a societal level.'

Prof. Cormac Ryan has been on Dr. Joe Tatta, DPT's podcast, talking all things pain education 🌟 Watch here:

youtube.com/watch?v=9h3apH…

New episode! What do you think?

Mary Wing 🇦🇺😷 urges clinicians to validate pain experiences and avoid stigmatising language.

Peer support offers important insights into clinician-patient-researcher collaborations. #patientexperience #chronicpain #codesign

Thousands of disabled people will get £2,800 a year less after the Universal Credit rollout, it’s emerged.

The ways in which the Tory party have found to push disabled people into poverty truly is endless. theguardian.com/society/2024/a…

I see this has resurfaced tonight.

Beth Darnall, PhD presents tomorrow at US Association for the Study of Pain in Seattle. She will be presenting on bringing accessible and evidenced-based pain care to all types of populations. If you’re in Seattle, stop by and catch this dynamic presentation!

11:30 am PST: usasp.memberclicks.net/2024-meeting-r…

It’s time forced tapering & patient abandonment is met with proper legal remedies. Opioids are FDA-approved medications indicated for the treatment of pain. No state prohibits their use.

As we’ve seen on this feed before: treat the patient before you.

clinicaladvisor.com/home/my-practi…

Episode 9! What do you think?

'Pain is more than a symptom, it takes over your life.'

Oluwafemi Ajayi has a powerful 'One Thing' message: We need to truly listen to those living with pain and challenges the stigma many face. #painresearch #patientexperience

A great reflective article from Bronnie Lennox Thompson 🐾🇳🇿🌈🎓 as usual about how to work with complexity. Working on a similar thesis myself where I contend that we, as HCPs, get taught wrongly to view the world as ordered when it has always been complex #cynefin healthskills.wordpress.com/2024/04/08/com…

'Complexity' and chronic pain:

healthskills.wordpress.com/2024/04/08/com…

a well-informed and reflective article with worthy insights (as always) by Bronnie Lennox Thompson 🐾🇳🇿🌈🎓

Helped with a survey for a “Family Fortunes” type learning exercise for Flippin PaIn. It’s a bit tongue in cheek but also a good way of learning & putting our point across, I hope!!

New episode! What do you think? Lee Vaughan challenges clinicians to step outside of traditional practice: Longer appointments? Better awareness of resources... And genuine collaboration with people living with pain. #chronicpain #patientvoice

Episode 7! What do you think? Pain isn't just about intensity, it's about how it affects every aspect of life. Pat Dennis challenges clinicians to expand their approach, explore diverse solutions, and help patients thrive despite pain. #chronicpain #patientexpertise